Sufferers of Morgellons disease complain of invisible parasites biting their skin. And they get skin lesions from which sprout strange fibers. And mysterious black spore-like specks appear on their skin. Cases of this strange disease seem to be spreading, especially in the Bay area. One theory is that it has something to do with Lyme disease. Or it may be a case of mass delusion. The medical community seems to think it's mass delusion. Most people who show up complaining of these symptoms get diagnosed with 'delusional parasitosis', which is a psychological problem in which people imagine that they're infested by parasites. Not having any medical qualifications at all, I won't weigh in on whether this is a real disease or mass delusion, but some of the behavior of the patients does sound suspiciously bizarre. Take the case of Theresa Blodgett:
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With the economy like it is I am finding it so hard to keep purchasing the products needed to keep these creeps at bay. Any suggestions?
This is my second post, but it's been quite some time.
Let me start by saying that I was sobbing when I sat down to write this. I just had to cancel a flight to Pittsburgh (my home town). Headed to see friends and family and attend a few Super Bowl parties to supprt my Steelers of course!!
I've been battling itching, crawling sensations, lesions all over my body for over six months. I've seen numerous dermotologists, even drove to Wake Forest. No answers not a damn (excuse my French) that seemed to want to find an answer. And to those that call us "obsessed:, your damn skippy I'm obsessed! If you could live in my shoes a day, as another sufferer mentioned, you would see why we are: OBSESSED! Am I angry? Yes, because my kids don't deserve this life I am having to live! The scariest thing is they too are comlaining of similair symptoms. Confirmining the suspision The suspicion that it is infecioious. It is full blown now and I don't know I need a Dr. that even if they don't have the answers, is willing to keep searching. Anyway, those of you with hope, reading your posts stopped my tears and gave me just that "hope" I needed to not feel so isolated! I have tried some online prducts, but even they though they gave some relief, are very expensive! I would jump on a plane tomorrow if I could get someone in the medical community to really listen.
Anyway, thank you to the believers. I am open to anything! Dr's specializing in this, diets, products, ANYTHING TO GET SOME RELIEF!!!! RELIEF!!!!!!!!!!!!!!
PLEASE SEND ME ANY IDEAS!
THANK YOU AND GOD BLESS ALL OF YOU THAT SUFFER WITH THIS!!!
"Lost in the South"
I
Germolene is only for external use. Please know that I am not a doctor or with any firm selling this product. I just am an elderly woman that found something that helps. Please consult your doctor before you use it, however. Thanks.
http://brandytwirl.multiply.com/photos/album/1/Morgellons_Pictures_Before_and_After_Treatment
You can also see a video here: http://www.morgellonshope.com/content/view/690/46/
If you have Morgellons, it is time to end your suffering.
Last night I was helping my husband by checking him for ingrown hairs on his legs, back and stomach. I use tweezers to gently pull them out of the skin so they don't itch any more- some of them really bother him. I came across one that was very deep and running straight instead of curled up like a normal ingrown hair. So I asked him if it was bothering him and if he wanted me to dig it out even if it hurt a little- he saild to do it cause it was itching and hurting him. So I did. I dug down until I found the hair- a normal hair as far as I can tell, but I noticed something else- stuck to the hair and pulling out of his skin were what looked like little synthetic fibers- like what you'd find on a fuzzy blanket. I thought "what on earth? Did he get some fibers from a bandage or something imbedded in his skin at some point? I didn't like the thought of leaving something under the skin so I kept digging and pulling getting fibers the whole time. Twice I pulled out a strange bit of tissue with fibers all through it and I could see them as they were coming out of his skin as I was using a light and a magnifying glass to see. It was truly bizzarre and made me worry so I looked up fibers under skin on google and found Morgellons. The more I read the more it makes me think of my husband and I am really concerned. We saved some fibers, and looked under a microscope and they are WEIRD! SO, are my husband and I both delusional?
Going to talk to the doc about it on Thursday, I just hope she listens and doesn't think we're crazy or something.
ANYWAYS, lol. He decided not to tell the doc at this time. His reasoning is even if she doesn't dismiss him out of hand there really isn't anything she can do to help him as it's unknown what causes it or what helps. If a breakthrough is made in treatment or what not then perhaps he'll think of talking to the doc.
youtube username: TheRealPhatgrower
I am without medication as nothing will help...
I have seen what it with me and it was my mistake to tell to the Doctor as now I am mental...
He will not listen and have nothing to do with me as I refuse medication.. I am sure it is something supernatural and after all this years I can hold it in line and it seems to weaken..
But it is still there and I have to keep myself out of not getting depressed.
It is unreal and I would not believe it myself if someone told me, but it is the truth...
God bless Charlotte
My question is: How in the hell do these fibers get into my hair roots? It did not get underneath my hair root by my clothing. I will post the pic/video by Nov 11, check it out, cuz it is real no matter how much people deny it or ignore it. I wish I was wrong, but I'm not. WE NEED HELP PEOPLE, at least look and see!!!!
Good on you
Hi,
I work at a non-profit group that helps develop diagnostics and treatments for an infectious disease that has similarities to Morgellons.
I'd like to find 20 or 30 patients diagnosed with Morgellons disease who would be willing to participate in a study. Participants would need to fill out a questionnaire, and provide a stool (fecal) sample.
We would need the patients to be in Oregon to fall under our IRB protocol. It would be preferable if they were in driving distance to Tigard or Corvallis to drop off the specimen.
If the patients were in another state, that would be OK, but we would need a physician in that state who would be willing to get IRB approval for the study. It can usually be done through a local hospital at no cost, but it requires some time. The physician would also have to receive the stool samples and ship them to a lab. BRF will pay for the collection vials and shipping and lab analysis.
The interface to this message board will not allow me to post my e mail address in a standard format, but that is director at bhomcenter dot org. If you google Blastocystis Research, our web site is the first listed, and you can click on Contact.
I'll also check back on this message board in a few days.
Best Wishes,
Ken
---
Blastocystis Research Foundation
5060 SW Philomath Blvd, #202
Corvallis, OR 97333
"Germs are of no account in cholera."
- Max von Pettenkofer, Cholera Expert, 1884
Note: This message was posted in http://www.morgellons-disease-research.com/Morgellons-Message-Board/morgellons-disease-fiber-disease/5742-can-anyone-find-me-20-30-morgellons-patients-study.html
Post from C.G. on Thu Jul 02, 2009 at 08:41 PM
"I don't do it for fun, ew! I help him with the ingrown hairs because they hurt and irritate him, and exfoliating just never has gotten them all. It's not like I dig at them most of the time, they're just in the top layer of his skin.
ANYWAYS, lol. He decided not to tell the doc at this time. His reasoning is even if she doesn't dismiss him out of hand there really isn't anything she can do to help him as it's unknown what causes it or what helps. If a breakthrough is made in treatment or what not then perhaps he'll think of talking to the doc."
-- C.G., It's not unknown what causes ingrown hairs, or what helps --
http://www.ehow.com/facts_5460820_ingrown-hair-infection.html
I can say that I was honestly a little confused as to what to believe.
That was before I started studying psychology.
That was also before he started kicking my ass.
Morgellon's...real or myth?
Elementary, my dear Watson. Your brain does some powerful things.
And please stop using Morgellon's as a scapegoat for all of the bad things that happen to you.
If SO many people have it, if it's SUCH a PSA-worthy problem, then why hasn't anything been done about it? Why do doctors and psychologists sit down and throw out parasitic psychosis? Wouldn't the government be concerned? Wouldn't this be globally recognized health concern?
Or would you suggest that it's all some "conspiracy"? Let me guess, microchips and contaminates that are purposely being put into planes that spray for mosquitoes? Is it aliens? Is it bugs?
Or is it your head? Is it possible that you could simply be taking all of the anomalies of the human bodies that happen so often and expanding upon them in order to satisfy your curiosity?
Tell you what...if you haven't already, go see a shrink. I think you have a little more to learn about yourself than you think you do.
off loaded your wisdom...
Morgellons IS REAL. I got it 3 months ago and have not slept since.
And have not found the culprit but YES the SYMPTOMS are the same... pinpricking bites, black specks, fibers. EVERYWHERE.
By the way... mites do not go up ears, nose, mouth and eyes... and yes... there and there....
It is a NIGHTMARE! I do not wish my enemy!
Now... go watch the movie and see why the CDC has done nothing for Lymers and Morgies alike.
UNDER OUR SKIN, the only way CDC will regulate the stuff is if the film gets an oscar...
TheRealPhatgrower is my username. This is a microscope video of a worm that came out of my skin after using ivermectin topically. Is it possible that a bacteria or fungus could have been engineered to quorum-sense into an organism? CAN SOMEONE PLEASE IDENTIFY THE WORM IN MY YOUTUBE VIDEOS? It would be nice if this plague was eventually identified and eradicated...
Who will take us sirjes?
I gave up writing to this Web....
I submitted five or six dozen of these particles to a prominent dermatologist (Joaquin Brieva) in Chicago, but after a brief look with a pocket magnifying glass, he dismissed them as dirt. Compare the shape of those particles with this image of a tropical rat mite: http://goo.gl/GV9Y8.
I submit that a bug that is 0.3mm long that doesn't want to be removed from the host, clings hard causing the investigator to shear their appendages off in the removal process. They can hang onto the surface of a bathtub very effectively. That's why patients are always submitting 'dirt particles' as evidence of a mite infestation.
Just ordered a more powerful microscope, hoping to be able to zoom in close enough to show the exoskeleton surface or image a nymph (which start out about the size of a pinpoint), thereby possibly dispelling the dirt particle answer more definitively.
Anyone know someone that has been treated (and gotten rid of them)? As a population, they're really tough to stop.
If you've already come up empty trying to get doctors to help you, you can try Eurax, which you can purchase over the counter on Amazon.co.uk (MedsChemist has the best prices). It will take at least two weeks to arrive. If you have a very hardy species (like Tropical Rat Mites), Eurax will help in a small way but will ultimately fail. You can also try Pyrethrin (buy Riptide and dilute it by two parts water to one part Riptide). It won't hurt you, but it may slow the bugs down. If you don't have any open lesions on your skin, you can try submerging yourself in saturated saline (about three pounds of salt per gallon of water).
Saturated saline is a nuclear weapon against skin parasites, but it will not affect any latent egg supply, so you'll probably have to take a dip a couple of times per day lasting anywhere from 70 minutes to twelve hours (depending on the hatch rate).
If you have the slightest cut, the salt will burn and make any small wound bigger (thereby exposing a larger section of skin to salt in future sessions). The answer to that is pain meds. If you don't mind the risk of morphine addiction, get a prescription for Vicodin or similar. If not, 600mg of gabapentin will take the edge off the salt burn after the first fifteen or twenty minutes. Although, in that initial period, gabapentin is helping, you'll still be quite uncomfortable; grit your teeth and have faith, it will pass.
FYI, it takes at least an hour for the gabapentin to get into your system, so you'll need to reserve an hour or two after first taking it before exposing your wounds to salt. It's best if you have a filter to keep the surface of the water from becoming a bug graveyard - you want to be able to monitor your progress, so you are only seeing freshly killed bugs on the surface, not dead bugs from previous sessions. That means your time in the salt will be occupied by sucking surface matter into the filter. If you can afford one, attach a skimmer to the filter intake and watch it work, otherwise you'll spend your time doing the skimmer's job by hand.
It may take several weeks to overcome any latent egg supply. You will not be able to work or have much of a life while you're engaged in this battle. Take great care not to cut yourself or otherwise damage the skin surface. If you do, you can try sealing cuts with nail polish, but you'll have to reapply it over and over because water degrades nail polish on skin very rapidly.
Good luck
when about 29(2 yrs ago)i developed a sore on my neck that grows strange white hairs and some black wire like hairs(they grow back daily)have removed some redstrand like hairs when trying to remove the problem. since i had some ingrown hairs in the past i thought nothing of it till the red strand now i just get clear or white thin hair like strands and just got a new bump developing on my scalp always prickly little black hairs and a few white or translucent hairs coming out I would never tell a doctor this and have been seeking what help i can but no insurance i do think there are some crazies jumping on the train butt there are some real strange documented cases along with the article and video about the one lady who's doctor had the FBI lab test her hair out of a wound and could not identify it as hair or any known fabric that has been tested I dont want attention lol i dont tell any one about it i am ashamed i act like its a acne problem and very embarrassed of my skin but starting to believe in this disease I remember when CWD came out(chronic wasting disease)that was affecting deer and some one joking that it came from insurance companies trying to kill off the population to save on claims well possibly lymes came from there to just a thought about these new diseases and it may have just went wrong(also there is a old book speaking about same symptoms of morgs)(can find the links to the vidd about the testing and the book one of the first medical books written still in existence)I have a lot of symptoms ppl are claiming like memory loss, fatigue, itchy all the time even before when i thought i just had foliculitus and now soars that would not heal But the scary part is i see it starting to affect my Girl of 7 yrs and worry for our kid. very strange that these same symptoms where described so long ago and that the AMA denies it and pushes the DP agenda wich some may have but not all there is also a video with the head of the AMA speaking about this and with facts slapped on the table and he is very strange in his answers and cant debate the issue with logic just pushes the agenda really think about it what do psychologist really do but judge ppl and talk if you have enough money to spend to cry to some one maybe your just a baby and if you think you can analyze or dose some one with chemical to get better its normal to be depressed, pissed off, and stand for your own beliefs its not normal to bend over and do what some one else tells you is best(for who them or the ppl in control of a nut job industry)maybe kids could get some help if they have been abused but dont think that any way being a drugged out zombie to get over your issues will help just deal with it and dont forget about all the crap our gov. here in the USA has done to people in the name of medical studies(lets see giving ppl ghonarea,sifilice ect that many died from not knowing any of what was goingon (also LSD xperiments)