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Questions Questions, so many Questions.

What is this Coast to Coast thing? Is it like the U.S Version of Kilroy?

And why do people insist on believing everything they read? There is a song, the title of which escapes me now, but that goes 'Son, believe half of what you see and none of what you hear'

This post seems to be 'mad scruffy people get scabbyitis. Mystery disease suspected. Government cover up. Doctors lie and cheat in case people find out. People up in arms, my Mom/Dog/Friend/Aunties Neighbour etc had this disease where they were covered in scabs, but doctors wouldn't treat them'

I mean. really. and then, someone mentioned Doctors don't believe in MS.

that should be ME. and it's not that doctors don't believe in it, but that the symptoms of ME are lethargy and tiredness. so that could mean EVERYBODY has ME. I have Windows ME, that is lethargic and tired. and also, is the plural of Haggis Haggii?

Greema, if you hav red and blue fibres on your hair brush, I'd probably stop wearing that stripy hat.

I can't wait until I get into a position of power and find out all you nutters are right about these cover ups, Area 51, contrails etc...

If Raoul is reading this, I didn't see a thing...

Matzus.

And yes, the plural of Haggis is Haggii. Or it should be, anyway.

Hey Matzusdog ,
I wish I had a stripey hat to blame this disease on. If reality scares you that much then you better get the hat and keep your eyes wide shut. I've paid hundreds of dollars to physicians to hear their ignorant words. Thanks , it's refreshing to get them as a freebie.

Greema

It really amazes me that some people can be so narrowminded and misinformed...(I might throw in ignorant as well.) Please do a bit more research before you casually dismiss all of these suffering people as having delusional parasitosis. Thank God I found a doctor who believed me and took biopsies of my skin and the lab actually found something. They even sent the biopsies to Raleigh where they confirmed a bacterial skin infection. I am being treated with antibiotics right now and other herbal remedies. Without the proper treatment these patients who are being labeled "delusional" will only continue to get sicker. Some will die or commit suicide, because unfortunately part of this disease is disorientation, "brain fog" and extreme dizziness and feelings of overwhelming fatique. People are NOT making this up. I am NOT making this up. My biopsies prove that. My symptoms prove that. Yes, there is a real disorder called "delusional parasitosis" but that usually occurs in people who at a later stage of confirmed mental illness. Delusional parasitosis does not happen out of the blue to well-educated, well respected, professional people, nor to WHOLE FAMILIES and to a cluster of people living in the same neighborhoods. WAKE UP PEOPLE! WAKE UP DERMATOLOGISTS and SCIENTISTS who can't see what is REALLY going on here. And I agree with the post above mine...so are the doctors that are finally "getting the picture" and giving proper diagnosis and getting their patients well and able to live normal lives again delusional as well. Actually, I think it is the doctors and scientists who so lightly dismiss their suffering patients who are the ones that are delusional. They think they KNOW IT ALL! I think I just might become the Erin Brockovich of Morgellons. I am just getting so mad!

It is absolutely amazing to me that there are so many misinformed, naïve, shallow, unenlightened, unmindful, and might I add -- incorrect doctors and scientists out there who are doing a great injustice to many of the patients who suffer from a very REAL disease called Morgellons. I happen to be one of them.

THANK GOD I found a doctor who did not take my complaints and symptoms lightly. He performed two punch biopsies on my skin lesions on my very first visit. Dr. Albright is a doctor of internal medicine. He looked at my skin lesions and admitted he had never seen anything like it. He was also concerned about some of my other symptoms which I had already seen him for prior to the skin lesions appearing. These symptoms were well documented by him, as well as my regular family physician. Dr. Albright did NOT tell me I was delusional, but instead reassured me that we would get to the bottom of this mystery.

The biopsies were delayed coming back from the lab because the local lab told Dr. Albright they definitely found something. The biopsies were sent to Raleigh, NC. Two days later they confirmed a bacterial skin infection which was causing the lesions.

I find it completely inhumane that doctors and dermatologists across the country are dismissing this illness as “delusional.” I think veterinarians would probably treat these very same patient’s pets with more respect! I do realize there is a very real disorder called “delusional parasitosis”, but this disorder manifests long after a patient has been diagnosed with a confirmed mental illness.

I can assure you, I am not delusional, nor am I mentally ill! (My husband might argue that point with you!) I DID not create these sores on my own. I have been employed by the same employer for almost fifteen years. I carry a large load of responsibility in my managerial position and have always received excellent employee reviews. I have sores on body parts that I could never reach to “self-inflict”. That theory is ABSURD!

It is about time for doctors to do the proper research on this baffling affliction.
I praise God that there are a handful who have. I have to agree with the post above…“so are the doctors that are recognizing this disease and treating it successfully delusional too?” GIVE ME A BREAK!

I am angered by all of this and I cry for the patients who have been so ill treated and ignored. If these patients do not receive the proper treatment they will only become sicker. I must speak out. Look out, I might become the next Erin Brockovich for Morgellons!

To the person who keeps posting as different people but is obviously the same perosn because not even the writing style ever changes....


Go home. Pick a scab or two. Have them analyzed by a lab that will say anything but "this person is delusional" and maybe six or seven people will believe you.

Hey Rod, your first name isn't Nim is it?
can you really afford the karma?

First of all, matzusdog, matzusdog, matzusdog! Don't rush to judge. Do you KNOW anyone who has this disease? Have you seen the things that people as Morgellon's sufferers have to go through? Have you had a first hand look at what these lesions look like? What you can see coming out of those lesions? Have you seen part of anyone's body getting holes eaten in it by this disease???
I have. My mother. I have seen what she goes through. What these lesions are doing to her. How they are eating holes through her nose, and I do mean THROUGH her nose! Whatever is eating my mom's nose just keeps eating and eating leaving behind necroting flesh. I am beginning to wonder if any doctor will see that something is wrong with her when her nose isn't there anymore! Maybe then they will finally look at her and say, "Well, maybe this isn't ROSCACIA after all." Lots of good that will do her then, eh? What do you think you would feel if YOU looked in the mirror every morning at a holes in your skin that just keep getting bigger and your doctor tells you it's just roscacia? Or you have one doctor tell you that you are being delusional? Only to find two weeks later that the holes are double in circumferance and depth? Would you begin to wonder if you were really delusional or if the doctors were delusional???

WAKE UP. This can happen to you at any moment, right now, in this time, and everyone will tell you you're just crazy. My mother, I, and my sister have all been put on anti-depressants and told to seek "professionl help". Funny, I thought we WERE seeking professional help by consulting a doctor.

Have the 3 of us become delusional about fatigue so bad that you don't even care if you eat, take a shower, get your bills paid, clean your home, drive, shop, go out to eat??? Have you ever awoken because you were trying to roll over in bed and you couldn't because the pain was so intense you felt like your entire spine was being ripped from your body??? And, after you were able to FORCE yourself over, do YOU awaken each morning so stiff you do good just to sit up in the bed???

I have been doing the last two listed for YEARS, and I am only 38. My sister also for YEARS and she is 31. My mom also and she is 64. Doctors can't blame this one away. All of the above mentioned, except for the lesions, we all 3 suffer. You know, we all have different doctors and my mom's is the only one beginning to take this seriously??? Dr. Jan Simms has finally realized that, even though the above mentioned symptoms can be attributed to depression, the lesions cannot. She also realizes that Roscacia dosen't cause lesions like this on the rest of your body. That illness is supposed to be confined to the face.

conclusion: to Rod also...
At first she could not accept what my mother was telling her, but when she saw the lesions and the information on Morgellon's, this little hick-
town doctor became smarter than some of the greatest doctors of our time. She actually has more common sense than the CDC.

Did thousands of people all wake up at the same time and become "delusional"??? Come now, if you say yes, you are foolish. A foolish man only hears the beating of his own heart and his mind is closed to NEW ideas and discoveries.

I have heard it said that it is better for a man to be THOUGHT a fool, than to open his mouth and remove all doubt.

Have you had your joints swell??? No, I don't mean muscles, I mean your bones??? Have you ever had a broken bone??? If so, can you remember the pain??? If not, I don't know any other way to describe to you the pain I feel
EVERYDAY of my life. If the lethargy doesn't keep me down, my left wrist and my left knee and my right foot will.

This by no means is all the symptoms that we 3 experience. It's funny how people who've never met, thousands of miles, even continents apart, have all become delusional with the EXACT same symptoms.
To me, the oddest thing of all is that NO ONE who lives with a Morgellon's sufferer thinks they are delusional and everyone else thinks they are.

Also, I don't know anything about area 51 except that it does exsist...I have seen it with my own eyes.

Secondly, I don't see the government covering up anything, what I see is them turning a blind eye to this disease.

Thirdly I have an idea that maybe YOU are the one sticken with ME. ME, I'm right, ME I'm too intelligent to believe this, ME, I think these people are looney, ME, I have trouble with plurals, and lastly, but not least, ME, I have trouble discerning abnormal (contrails, maybe this is from Mars) thoughts from normal thoughts. Normal thoughts being that AIDS is real. Normal thougts that Chronic Fatigue Syndrome is real. Normal thoughts that tell you to remember a time in American medicine when these two diseases WOULD NOT BE recognized by the medical field but are now known to be VERY REAL. Normal thoughts that tell you, yes, man HAS actually walked on the moon.
Oh, wait, did you go to the moon and actually WATCH those guys walk on the moon??? When my 100 year-old great-grandfather died in 1979, he went to his grave NOT believing that man had ever even made it to the moon, much less walked on it. But he was a little senile.

Fourthly, MS was considered a hoax in the 1950's. Doctors told these people that they were just lazy.

I am 38 with a 16 month old baby girl. I was told by doctors that I would NEVER be able to get pregnant and if I did I would NEVER carry that baby to term; that I would have a misscarriage. Then I was told I was going to have a down-syndrome child. Guess what. She's not. She is in perfect health. Doctors DON'T know everything. Seems to me with the given pattern that exsists today in conventional medicine, that doctors are becoming "Delusional of down-syndromitis".

I would love to just pick a scab and "get it over with" because sometimes I can't pick my daughter up, the only child I will ever have.

AND FOR ROD: The doctor's name is Dr. William Harvey and he is located in Houston TX. You know, the one who has quit his PRIVATE practice to devote his time to researching Morgellon's???
And not just him, there are others. I've got his phone number if you would like to call him. He charges $300 per hour for phone consultation.

Dr. Charles Crist from Springfield MO. I have his number too, if you'd like.

Or, maybe you won't contact these doctors because they will tell you something you don't want to hear...that ME is wrong.

I know I'm about to write a book here, but before anyone gets the idea that I wake up stiff and in PAIN is because I need a new mattress, don't bother. I got one 2 years ago. A Select Comfort...the air bed you can adjust from marshmallow to concrete. I like the concrete setting best...

To the person who claimed the same person was writing the posts about Morgellons. The first time I posted my "rant" it looked like it did not post at all and I lost it. I had written it directly into this site, not in a Word Document and I did not have a copy of it. So I took the time to rewrite it from memory because I felt it was important enough to post here.
It is just so hard for me to accept that there are so many people out there who make fun of and ridicule their fellow human beings who are only trying to get answers from their doctors and get well. I don't know about you, but I don't particularly favor being sick. I enjoy life too much and I am usually a very positive and upbeat person. My husband counted the number of skin lesions I have last night. He had to because some are in places I can not see or begin to reach, so you can forget thinking I am creating these sores. I have 24 lesions total. Do they itch????
Yes! Do I scratch at them sometimes???? Yes! Have you ever had poison ivy or mosquito bites. Do they itch???? Have you ever scratched because of the rash or bite. I would certainly venture to say YES, you have!
NO!!!!! WAIT...........there's no such thing as mosquitoes...they don't exist...and that bite and the itching you are experiencing...well, dear...just try to pretend it isn't happening...because you know what...YOU ARE DELUSIONAL - it's all in your head.
I will say it again...GIVE ME A BREAK!

Ah...Ms. Vicoria! So glad to see your posting is consistent and unrelenting otherwise the world will continue to be naive, uneducated about new things, and ignorance will reign supreme!!!
Lynn

I won't stop until there is a proper diagnosis and cure for this. You can count on that!

So...

What you're saying is that because lots of poeple claim it's true means it is?

Yeah, I saw Elvis yesterday. Just like many many thousands have since he died. Must be real then.

As to chronic pain, I've got my share. None of your business what it is though, just like nobody wants to hear your totally off topic complaints about broken bones.

And coming from someone who knows when enough is enough, "I have heard it said that it is better for a man to be THOUGHT a fool, than to open his mouth and remove all doubt. " - Jaleenasmom

My grandfather used to say some people talked just to hear the sound of their own voice because it made them feel smarter. He was a country bumpkin, but a SMART country bumpkin.

And I guess if you say you haven't seen Morgellons then it's NOT real????

And, no, I am not saying just because lots of people claim it's true means it is. That is weird logic, Rod, yeah nigh unto Narcissistic Personality Disorder, or, maybe you're just wet behind the ears. What I am saying is I have more proof that it does exsist and IS real more than you have proof that it is NOT.

I've never been a big Elvis fan.

I am not ASKING YOU if you have chronic pain. I only want to hear about that from people who DO have chronic pain and it makes them feel better to talk about it so they know they have support from others who walk in their shoes everyday.

I asked you if you ever had a broken bone because that is what I liken the pain to when I wake up every morning. And, yes, because I say I have broken-bone-like-pain, makes it real, whether it matters to you or not. I do not know you so I couldn't care less if you believe in Morgellons or want to hear about my "off topic" complaints.

If YOU don't want to hear them, don't read my posts.

I, however, find your posts very interesting. Why? I find the way you shoot aggresion to those who believe they have Morgellons is odd. I mean, it's like you are afraid that Morgellons may actually be real and you'll have to admit you're wrong, (NPD) but if you don't have it and you don't know anyone who does, why do you care? Why do you care what others think about it?

Are you saying you are so intelligent that you know that Morgellons is not a real disease? ME-I'm smarter!

Have you asked me for that # to call to Dr. Harvey yet?
I know that he is a doctor and a researcher.

Have you asked me for the # to Dr. Crist?
He, too, is a doctor that treats Morgellons.
And your line of work is...?
(None of my business, but I'm sure everyone would like to know exactly what kind of doctor/scientist/researcher you are and in what field? You've got to be in one of these catagories otherwise your argument REALLY doesn't make sense.)

Or, maybe it's like I said in my earlier post, maybe you won't contact these doctors because they will tell you something you don't want to hear...that ME is wrong. I asked earlier if you knew who Dr. Harvey was. No reply.

Talk about talking off the subject!

You haven't even addressed those two comments and began to give a poor analogy of Elvis sightings vs. something scientific. Something that can actually be looked at, studied and observed.

And before you ask, yes, I DO have a degree in biology and psychology.

Don't need to be a researcher. Just need to have read a few med books, and be grounded in reality.

"My grandfather used to say some people talked just to hear the sound of their own voice because it made them feel smarter." - jaleenasmom

...And how many thousand words do you have here trying to convince people figments of imagination exist?

Just got back from my doctor of internal medicine and he confirmed that I DEFINTELY have a bacterial infection and the lab in Raleigh can see it. The problem is...it is something new that DOES NOT FIT THEIR MEDICAL BOOKS. The doctor is being so supportive and took six more vials of blood to send off for additional tests, one of which is the SPEP test which is more conclusive than the PCR. He is really stumped, but he admits there is definitely something there. He confirmed I am NOT delusional! His nurse was so supportive too and they are also doing tests for parasites now. He named off a whole list of parasites that can cause some of the same symptoms I have and said I could actually have both...the confirmed bacterial infection as well as parasites. At least I feel like we might be getting somewhere. I will not waste my time responding to Ron's ignorant attitude anymore. It is a waste of energy that could be better spent doing more research.

So therefore...

...This is a bacterial or parasitical infection, and not "morgellons".

You said it.

And I still wanna see proof. Start a website with actual proof. You know, scientific proof, conclusions of AMA studies, analysis of the tissue samples, etc.

You would be SO happy if you could change my mind. And if you prove it I'll freely admit being wrong. So now you've got some incentive to go to school and become a lab tech.

Oh, and I like the way you intentionally spelled my name wrong, way too cool! Not petty or nothin.