Sufferers of
Morgellons disease complain of invisible parasites biting their skin. And they get skin lesions from which sprout strange fibers. And mysterious black spore-like specks appear on their skin. Cases of this strange disease
seem to be spreading, especially in the Bay area. One theory is that it has something to do with Lyme disease. Or it may be a case of mass delusion. The medical community
seems to think it's mass delusion. Most people who show up complaining of these symptoms get diagnosed with 'delusional parasitosis', which is a psychological problem in which people imagine that they're infested by parasites. Not having any medical qualifications at all, I won't weigh in on whether this is a real disease or mass delusion, but some of the behavior of the patients does sound suspiciously bizarre. Take the case of Theresa Blodgett:
She gathers up the black specks, the mysterious fibers and the small, fuzzy 'cocoons' she finds on her skin and around her home. She tapes the macabre samples to typing paper, but she said no doctor will analyze the collection. Physicians who glance at the specimens dismiss the lot as stray hairs, clothing fibers, scabs and other common household debris, she said.
So either she really is suffering from something and is desperately but unsuccessfully trying to get doctors to pay attention to her, or she's obsessively collecting house dust and stray flecks of dirt and convincing herself that these things are parasites attacking her. (Thanks to 'K' for the links)
Comments
Good luck, and yes spreading like wild fire!
Mary Mahmud
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My findings are that it is a skin worm from South AMerica, creeped its way here. There are sightings all over the world with countries with smarter doctors!!
.(JavaScript must be enabled to view this email address) (marc from Safe2u-too!)
are you the same marc from safe2use who claimed his problem was the tropical rat mite?
Don't use the term morgellons, the CDC has already said morgellons is not a disease, you'll lose credability if you use the term morgellons.
If you think the so-called morgellons is your problem, then your best bet is to talk to these people:
http://www.headlice.org/news/2005/august/tiny_bugs_wreak_havoc.htm
Thanks all, take care.
I have to correct you, only the MORGELLONS FOUNDATION (most professionals debate) say it is Morgellons. Morgellons name is a term of the 1600's in France where skin worms (hookworm type) disease inflicted humans.
My doctor, and close to about another dozen doctors I spoke to say Morgellons is a self named disease/disorder by the Morgellons Foundation. Doctors and the CDC do NOT call it Morgellons,
Happy paper writing, but I am way ahead of you with state, federal government contact!!
skin worms like Creeping Nematode of Borneo is 99% what this is. Bottome line!!!,,,stick a foriegn substance in the USA, and you get new symptoms......BIRD FLU, SARS and other crap come from ASIA,,,so did this!!!
So, open your eyes,,,Morgellons excepts donations,,,what the hell have they done for this??? I did more as a sales rep for IBM!!!!, becuase I had to beat it and havea life again. The coach of teh Chicago Bulls, and a feww Very Important people have gotten this, and beaten this.
People should either diet (holistic) or go get Thiebendazole and take it for 2 to 8 weeks.!!
Simple, don't give this skin worm/parasite the Morgellons name, I personally think they are crooks!!!
For the record, I never said Morgellons was an actual disease, I never said doctors call it that, so talk about checking your facts, because that's what I've been doing. And I've already contacted the CDC, so I think I'm well off without your opinion.
Anyone who is not an ass can e-mail me if they would like. I won't waste my time here anymore.
Take care.
Cheers
Safe2use has been treating this for years!!!,,,it's eternal rat mites!!!,,see my skin Dr. Bozo,,,,leave now!
So "delusive parasitosis" (the Drs-clueless-so-call-patients-crazy disease;-p) is caused by either Collembola and/or the Morgellons infestations. Is this correct?
Have you read about association with Dental Sealants as a cause?
So how are Morgellon's Disease and Collembola related? Similar mite? Are Morgellon's in the order of Collembola? Do they respond to similar treatments? Is a Morgellon just a hairy collembola? What is the name of the mite which causes the fibers?
My collembola symptoms are (in this order) a reddened area, then itchy red bumps and then open lesions, then small black lines and black specs. Sometimes large collections of bumps appear. The lesions attract additional infestation.
Please, anyone feel free to provide any insights or feedback you may have. I believe I have a treatment regimen that I believe will heal and rid myself of Collembola in the next 4-6 weeks. I am eager to share what I have learned.
ddx in Chicago
I found out what is was, full diagnosis, and beat it wit diet,,,if you want there all prescriptions,,,,feel free to reach out to me.....beware of others here,,,,for they may want to do the ole,,,rippo-offo!!!
I am interested in what you say about having been prescribed thiabendazole for this. Would you be good enough to tell us the actual dose that you had, and exactly how long you had to take it? This is one of the azole drugs, used in worm infestations. Some scientists believe that the primary organism in this new disease is a fluke shaped nematode, which has other 'parts' to it, including mucus like worms, hairs, and the grey and coloured fibers. If this is so, I can see why you were prescribed medication from the azole group.
Please say more about the diet that helped you too. I do not see how a diet in itself would cure anyone, but it could certainly help, perhaps alongside medication, as you said.
I think that entrenched infection could attract collembola (which research has proven)and perhaps other arthropods.
Anyone with this horrible condition is likely to have, in addition to the brain fog, high levels of irritation. Please do not let this get in the way of realising when someone might be indicating the right answers, as that really would be a tragedy.
For those who claim to have been cured solely by diet, please post more details. I do not think it fair to expect anyone to pay for a diet sheet when they are so ill and desperate.
Marc, I hope that you tell us of the medication regimen that you were prescribed, thus allowing fellow sufferers to request the same, (or perhaps a similar drug), from their doctors.
With best wishes to you all,
Mo.
I cannot prescribe Thiebendazole, I am not a doctor.
40.00 for diet is peanuts!!!,,,buying the herbs and suppliments needed are big bucks,,,,
I am sorry that I charge to keep my site open.
If you can tell my bill sto stop billing me for a while that will help, until then, good luck!
my time is money,,,,sorry!,,I have a family and life.
If you want to get cured (and you will receive the prper way of curing yourself) go see my site http://www.be-healthy-forever.com
by the way,,,it is named THE CREEPING NEMATODE of BORNEO,,,now asia!
Take care, & good luck!~
marc and paul!
Good luck wart face!
Lester, customer service mananger
Infectious Desease doctors know what skin worm from ASIA this is. OK. Some form of CLM, OK!
Get on Thiabendazole pills for 60 days, get the hookhorm blood work ups, and stop waisting your time.
I happened to beat this holistically, and I have repeatedly asked this ASSHOLE firm to take me off the list.
Regular MDs don't treat this. Southern Doctors in ID/TD can fix up up or lay off the sugar for 90 days OK,
Good luck everyone, this site is clowns!
I've been researching since I was last here and found this topic is finally getting attention in scientific circles. Some of it reads like a sci-fi novel.
Morgellon's and Collembola are caused by separate, but perhaps related afflictions going on here-- and none of them are delusional. I found some amazing images a Morgellon's and they looked like hairy nematodes to me. Thousands of families around the world are reporting infestation. A group of scientists has been studying them -- did you know they glow under black and UV light? And they definitely move and jump, so forget the fungus theory. Early, unpublished analysis shows indication of labatory, or synthesized origins.
One reason there is so much controversy is that there are actually a number of crawling mites which create creepy, stinging, biting or crawling sensations...scabies, rat mites, bird mites (etc), collembola (springtails) and Morgellon's. Springtails, for their part, are highly opportunistic moving in existing infestations, which is what happened to me. I believe many sufferers of Morgellon's also have springtails biting them. (I'm lucky in that I only have springtails, and after reading so about the Morgellon's worms I want to know what I can do to avoid them!)
I'm going to order the diet, anything can help. I believe these are systemic infections which require an integrated and wholistic approach to curing them.
Good luck to all the sufferers out there. Read and learn as much as you can.
DDx
London re Garlic advice
Morgellon's are classified as Quorum Sensing, so as it turns out Garlic is an effective Quorum Sensing inhibitor. I would not only injest it but will try spreading directly on lesions and areas of infection. The abstract from the University of Zurich
http://botserv1.unizh.ch/site/site/research/projects/QSBlocker.php
describes how quorum sensing inhibitors "interfere with bacterial cel to cell communications".
In summary, all Morgellon sufferers should be ALL OVER garlic (I'm guessing part of diet plan referenced??). Yet another example of the powers of garlic!
Great advice, London, thanks.
DDX
That person is definitely on the right track. Srangely enough, many people have been cleared of this strange condition by receiving lyme disease treatment. Is this a rare form of lyme disease? Lyme disease is more common than many people think. I, at first, thought ofr ure there were bugs on me but it turns out that microscope images determined that there was indeed dermatophytic fungus growing all over my skin. A dermatophyte fungus causes the crawling sensations because it is a plant type fungus. that is, it actually grows roots- thus causing the sensations. Also the info which mialabu offered says that the airs attract each other. this sounds tru too as that's what it feels like.
Good luck everyone I know what you're going through.
That is just fluff though... I have been afflicted with this thing for at least 5 years now- but only aware it was a parasite for 1 year. In that year I have methodically tried many different treatments, some working better than others. I have retried treatments that didn't work the 1st time and had better results (and vice versa). My personal instinct and feeling is that this thing is CYCLICAL! Figuring out what the cycle is would have to take place in a lab... Just when I think it is a monthly cycle (or whatever) the pattern changes... Probably because I somehow become reinfested with worms at a different stage...
This is my first posting and I have some specific intrests to pursue and am very willing to share what I have learned.
Foremost I am concerned because my 11mo old granddaughter lives with me and I have seen fibers on her. She has had a few seizures that are under control on phenolbarbitol. I have heard Morgellons correlated with autism and ADHD in children. Anyone out there with kid experience?
I will end this missive with the following advice:
Trust your instinct about how YOU treat this (regarding medication, herbs, personal and environmental hygeine, etc.) Read up on and aim to strengthen your immune system... the ultimate cure for all!!
I would encourage all to register on the Morgellons site. You will only receive informational emails -NO SPAM !- As far as I can tell they are the center of all that is Morgellon and definitely the most active toward finding some answers, if not a cure!! Especially if you live in a cluster state (CA, GA, or NY)! 😝
Unfortunately for the sufferers, "morgellons" is more concerned with self-serving politics and greed, than they are with actually helping any of you people.
All "morgellons" is here for is a distraction, and to offer you a false sense of hope that something positive will actually happen through them.
Someday the truth will come out and hopefully the people involved will be held accountable for prolonging the suffering and impeding any legitimate scientific progress.
I guarantee you that in one year's time the "morgellons" foundation will still have all of up the river without a paddle.
If you are actually interested in finding out what is really bugging you then here you go:
http://www.headlice.org/news/2005/august/tiny_bugs_wreak_havoc.htm
I am also more inclined to believe and information site not linked to advertising!!
I'm glad you believe,
I actually do know a thing or two about morgellons, having been a registrant a few years back, I don't know where you get your ideas from -hmm,i wonder, but if you knew anything you'd know the symptoms are the same. I also have had collembola identified in my skin scrapings and am now being treated for that. and guess what, my symptoms have subsided and lesions almost all gone. So yes this morgellons disease is collembola. Of course people may have varying degrees of symptoms but it is all the same condition, if it wasn't then nobody would have recieved the delusional diagnosis.
I'm not sure what you are talking about when you mention advertising, but I have seen ad's at Lymebusters, so maybe that's what you are talking about.
Anyways, I wish people like you would stop spreading misinformation, it does nothing to further the cause, and does not bring you any closer to any kind of medical help.
"of and on blue or red feet
and tooth starting to "crisp"
Are this getting familiar symptoms of Morgellons too.
every other symptom is familiar
pleaSE FILL ME IN.
aREND TER HORST Amsterdam
If you are suffering from this problem, please call their toll free phone at 1-866-314-8917. Their trained specialists have patient with your problem.
The trditional use of 5% Permethrin (Elimite) to treat scabies or head lice has never worked for this type of skin infection.
don't bother ordering from these idiots unless you are looking to ruin your eyesight.
The NPA is a godsend and they should be commended for all their efforts in trying to bring this skin disease to the attention of the medical and scientific communities, I wish more sufferers would support them.
Dr. Schwartz
"As for the nurse who says that just because so many people claim it that it must be true." That nurse you are talking about happens to be a world renowned Lyme Disease specialist, who has had patients come in from tons of different countries. She is a Nurse Practioner, and won the Nurse Practioner of the year award in 2004. She speaks at Lyme conferences all the time, because they realize that she is one of a few hundred people who fully understand Lyme Disease. She is a genius and with her knowledge alone, she could beat almost any doctor's practice around in Texas.
Her name is Ginger Savely, and she was the one who was interviewed by about 10 different news stations in Texas and in a recent article in Popular mechanics, all having to do with Morgellons.
She saved my life, and she was the only one who didn't treat me like a leper, like the first doctor who saw me in the ER when I got it. She actually, "GOSH," examined me unlike the two previous doctors before her, since she actually understood that a natural response in her situation would be to at least see if I didn't have DOP. She looked at my legs, which were covered by lesions, and oozing puss. And then she got out a 10x magnifiying glass, which is all you need in order to see the psychical manifestations of Morgellons. Well actually you can see them with the naked eye coming out of your skin in little black and white specks that look like cotton, but the magnifiying glass let's you see that those little specks aren't just dirt or dust. Not to mention that they were coming out of my skin, which she and her nurse witnessed. When she examined them, she saw the parasites, and since she had treated so many cases, it was a very easy diagnoses since my symptoms aren't in the medical books, yet. I was diagnosed with Morgellons Disease. It took her a total of about 8 minutes to do that. Then she took my blood, to have it tested for Lyme Disease, and what do you know? It came back positive.
Yes, it's in my medical records if you want some copies. Morgellon's Disease in fine print. Not to mention that I submitted these medical documents to my government, in order to obtain SSI because i'm currently disabled from this disease. They approved my application.
That's why i'm picturing you as a non-human entity, just regurgitating your constant idea that everything in life is explainable, and that our scientific "theories" are the ultimate truth in the world, except for the ongoing scientific process of new discovery and research. Hey, i'm probably wrong about you, but in the subjective reality that is forming around my 1's and 0's, the "fact" is that I have this disease and the "fact" is the CDC has been investigating it, and it will become another known disease soon enough. We'll of dismissed each other by then, and our subconsiouness might retain just a bit of the memory of these words.
Basically, I am a moral and ethical person, who would most likely never resort to violence unless it was in self defense. But if you
say one more spiteful word about Ginger Savely, I will excersize extreme physical force on your body... enough to make you feel a
0.000001% of the pain I deal with everyday, but that's of course if you have a body, heh. Can you prove to me that you exist? Come on
i'll play your game and i'll manage to do the same thing you did, committ an atrocious amount of ignorance by completely unhealthy
skeptical design. But I am serious, because she has saved me from taking my own life, and she could crush your ignorance in one fell
swoop of rhetoric, if you had the guts to actually call her. Are we clear here?
diagnosed with a physical disease.
There, now that I told you that, how about you listen to how the first doctor, when I got Morgellons Disease, treated me in the ER,
He talked to me for a total of 3 minutes, refused to even examine my huge lesions on my legs(Delusional Parasotitis is supposed to be the
last conclusion to investigation of someones complaints of physical maladays, not the first) and he didn't even take my vitals and walked
out. I was told to leave, and he never mentioned anything. I had been diagnosed as Delusional Parasotitis by this so called "reputable"
doctor because his ego, and his belief that he was excellently versed in the alimighty book of the DSM. But of course he failed to do
anything right in his treatment of me, and it was a clear case of negligance. He didn't mention, "oh maybe you could be seeing things,"
or examine me, or recommend me a psychiatrist, or bother to have the balls to actually do his job. In all the medical journals about
DOP, it always says to at least examine the patients concern, just in case they have scabies or some kind of ailment and then, if they
don't, ease them into positive thinking about the fact that they're most likely seeing things, and recommend a psychiatrist.
These are the doctors that Morgellons sufferers deal with. They're on par with you, as far as skeptisicsm is concerned. And you wonder
why this disease hasn't been recognized as a "true" medical disease. We're awash in a medical community of people like you, and it's
only the doctors who show compassion for their patients that recognize something weird is happening in their bodies, and it's not in
their minds.
Oh and also. since my NP studied this disease all her life, she and all of the other hundreds of doctors who are proficient in Lyme
Disease treatment are trying to urge the CDC and medical community to stop with the misinformation that is currently widespread. Doctors
think it's a rare disease. It's an epidemic in America now, and it has many vectors, not just the infamous ticks that only leave
bulls-eye rashes about 10% of the time. , and from her research she has told me that 75% percent of what the CDC information on Lyme
Disease is completely false. I myself, believe her, espesically after constant research... I mean does anyone honestly think that a
chronic lyme patient can be cured by a 30 day antibiotic treatment that the CDC claims? The Lyme Doctors I mentioned are willing to give
anyone $50,000 if they can show that they cured a chronic sufferer with the CDC's bonfied treatment.
Oh yah, but that offer has been there for about 6-7 years now, with these Lyme doctors completely promoting it all the time to the CDC
and to any healthcare worker.
http://www.rense.com/general69/lyme.htm
http://www.msnbc.msn.com/id/10039154/
Anyway, i'll get back to Morgellons.
Dr. Scwhartz which has been mentioned here, has recently, from research of his Morgellon patients, proposed the theory that this disease
is some kind of disease that possibly is a combination of Schistosomiasis and S MALTOPHILIA.
http://www.path.cam.ac.uk/~schisto/Background/General.Pathology.html
http://www.engin.umich.edu/dept/cee/research/HSRC/index.html
http://www.nhm.ac.uk/hosted_sites/schisto/prcschisto/abst/abst37.html
http://www.ingentaconnect.com/content/cabi/joh/2002/00000076/00000002/art00007
There's some info for you to blow off.
Oh and now we have the disease of Morgellons classified on a governmental healthcare website:
http://www.healthfinder.gov/orgs/HR3704.htm
Yah, healthfinder.gov that sure sounds like one of those crazy conspiracy sites doesn't it? Oh wait, no, it's actually a very serious
health website that is being maintained by our government to inform people about all kinds of things, like novel diseases that actually
CAN become a reality in this world.
The fact is, I know you'll just slip right around all of these things i've shown to you, and claim healthy skepticism. If I was a
psychiatrist, I would classify you as having Borderline Personality Disorder, a little bit of Narcissitic tendicies, and an all around
seriously lonely and afraid lost soul, who uses all sorts of seriously awful psychological schemas of self-defense mechanisms that he's
built up throughout his life. And he can't let himself know about his self-defense mechanisms, because without them he would feel dead,
mentally and spiritually. And the most natural and serious ability of living things, is self survival.
Go ahead and wind up like one of those doctors i've talked about, but when you are finally alone and realize you're in a black abyss of
despair, you'll be screaming out into the world because you'll realize your life is a very empty one, and there will be no one to comfort
you.
now I don't experience any more, because i've learned the lessons of morality, ethics, compassion for everyone, and a spiritual
awakening. I hope you'll find those qualities too, but not from a godawful disease like Morgellons, a disease that you are continuning
to perpuate and frame into your own twisted reality.
No hard feelings, I don't hate you or have any negative feelings towards you. If you perceive that from my message, then you're just
mistaking the whole message for something it's not. I'm not out to try and provoke you, humiliate you, or anger you... i'm just trying
to help you understand that the path your leading now in your life, in my opinion, is a path that will further you away from all comfort
and solace. And will leave you a soul-less wreck. I don't want that to happen to you, I want you to have a happy life.
Travis
Dr. George R Schwartz newly published a book decribing MORGELLONS. If you are interested, please view his website at
http://www.healingresearch.org/new.html
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new book!!
Lisa's Disease, Fiber Disease, Also known as Morgellon's disease: Origins, staging, clinical course, treatment, case histories, decontamination of house--much more !!!
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