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Morgellons Disease: Is It Real?
Sufferers of Morgellons disease complain of invisible parasites biting their skin. And they get skin lesions from which sprout strange fibers. And mysterious black spore-like specks appear on their skin. Cases of this strange disease seem to be spreading, especially in the Bay area. One theory is that it has something to do with Lyme disease. Or it may be a case of mass delusion. The medical community seems to think it's mass delusion. Most people who show up complaining of these symptoms get diagnosed with 'delusional parasitosis', which is a psychological problem in which people imagine that they're infested by parasites. Not having any medical qualifications at all, I won't weigh in on whether this is a real disease or mass delusion, but some of the behavior of the patients does sound suspiciously bizarre. Take the case of Theresa Blodgett:She gathers up the black specks, the mysterious fibers and the small, fuzzy 'cocoons' she finds on her skin and around her home. She tapes the macabre samples to typing paper, but she said no doctor will analyze the collection. Physicians who glance at the specimens dismiss the lot as stray hairs, clothing fibers, scabs and other common household debris, she said.
So either she really is suffering from something and is desperately but unsuccessfully trying to get doctors to pay attention to her, or she's obsessively collecting house dust and stray flecks of dirt and convincing herself that these things are parasites attacking her. (Thanks to 'K' for the links)
Posted By: Alex | Date: Thu Feb 10, 2005 | Permalink |
Total Comments: 586
Category: Health/Medicine, Psychology
Category: Health/Medicine, Psychology
Listed in chronological order. Newest comments at the end.
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He says, "Surely you're not going to go on t.v. about this!" She said yes, she was, and
she was going to tell them how doctors have been treating people with Morgellons
Disease.
At this point her phone went dead and he DID NOT call her back. She didn't call back
either...she'd had most of her say.
Now, I get mine with him.
My mom is 65. She is a spunky old gal. People mistake her for "a little old woman".
They get the shock of their lives when they try to pull something on her!
She is smart and extremely quick witted and sharp minded.
He's floating up Crap Creek.
Posted by jaleenasmom on Thu Apr 21, 2005 at 11:12 AM
she was going to tell them how doctors have been treating people with Morgellons
Disease.
At this point her phone went dead and he DID NOT call her back. She didn't call back
either...she'd had most of her say.
Now, I get mine with him.
My mom is 65. She is a spunky old gal. People mistake her for "a little old woman".
They get the shock of their lives when they try to pull something on her!
She is smart and extremely quick witted and sharp minded.
He's floating up Crap Creek.
Sorry, it's "spirochaete" (spiral-shaped bacteria) 
Posted by jaleenasmom on Thu Apr 21, 2005 at 06:18 PM
HUGS for everyone, youwantproof!!!Hugs for all these docs who are in fear. Where is the hypocratic oath? Gone, I should say. None would dare investigate, none will admit what we know, yet none will EVER hug you.
If not, why not?
I have been in contact this afternoon with my internist. He wants ME to come see HIM. I must have gotten his attention with whatever I told my nurse. However, he is a brilliant, open-minded physician, who takes time and does his study.
He believes God (sorry Rod, I know you won't believe THIS) had called for him to be a doctor at the age of 13. He is now 47. He came here after years of practice from Memphis Tennessee. If you're from these parts you know that Memphis is notorious for producing excellent doctors. He came here because he knew that we don't have any really good physicians.
You have to put your name on a waiting list to get to see him. I was on that list for 2 years!!!
So, I have an appointment with him to discuss new information about Lyme, Erchilosis, Babesiosis, and Morgellons.
A microbiology professor at a local university is EXCITED about what they are seeing! I told him the folks that have Morgellons aren't too excited, but I hoped it moved him to action. It has...more to come.
I wish I could contact Dr. Joseph Burasscano. I've scoured the net looking for how to contact him and the only way I can figure to do so is to start contacting web sites that feature his name. Anyone know how to get him???
I am willing to fly to NY at this moment to become a patient if he'll have me. I wonder how many others that are aware of his work would do the same?
Bad, painful day...
Later
Nite raoul
Good night, Jmo
Posted by Raoul on Thu Apr 21, 2005 at 08:49 PM
I haven't been here for awhile now and can't believe that some (that's you included, Rod) are still "playing" with everyone who is so deathly sick. You are having fun at our expense and truth be told, you might already be infected and not even know it yet. What goes around comes around, and often in spades.
A test was done in several motels and hotels across the country, some very high-class expensive ones, and all of them had these fibers on their supposedly clean sheets as well as other areas of the rooms. This was not done by a medical professional, as they surely could not be bothered with trying to figure this out, so it won't be published in any "Peer Reviewed" journals. But it's 100% accurate, nonetheless, and I hope you never spend the night in one of these places while your immune system is down.
More doctors and scientists know about this than are admitting and I daresay if we come to this forum two years from now, the discussions won't be about whether it exists or not. Instead, the posts will be from people begging for help!
BTW, Lymebusters is not a name for a disease, it's a place for people who suffer from Lyme and/or Morgellons, and the numbers are growing daily. The people who started it are totally dedicated to helping others. As for Morgellons, it was started by a Biologist whose son was suffering from the disease. The name is not important; through years of intensive research, Morgellons was found to be the only disease resembling what we suffer today so that is what it's called. And yes, there are many dedicated and brave doctors affiliated with Morgellons who will not stop until our suffering has ended.
I could care less whether anyone believes me or not, time will prove to be a downfall to all the skeptics, who will probably be suffering while we all are finally cured and getting on with our lives.
It will be pure heaven to see all those tables turned.
Posted by Lymebuster on Fri Apr 22, 2005 at 06:31 AM
A test was done in several motels and hotels across the country, some very high-class expensive ones, and all of them had these fibers on their supposedly clean sheets as well as other areas of the rooms. This was not done by a medical professional, as they surely could not be bothered with trying to figure this out, so it won't be published in any "Peer Reviewed" journals. But it's 100% accurate, nonetheless, and I hope you never spend the night in one of these places while your immune system is down.
More doctors and scientists know about this than are admitting and I daresay if we come to this forum two years from now, the discussions won't be about whether it exists or not. Instead, the posts will be from people begging for help!
BTW, Lymebusters is not a name for a disease, it's a place for people who suffer from Lyme and/or Morgellons, and the numbers are growing daily. The people who started it are totally dedicated to helping others. As for Morgellons, it was started by a Biologist whose son was suffering from the disease. The name is not important; through years of intensive research, Morgellons was found to be the only disease resembling what we suffer today so that is what it's called. And yes, there are many dedicated and brave doctors affiliated with Morgellons who will not stop until our suffering has ended.
I could care less whether anyone believes me or not, time will prove to be a downfall to all the skeptics, who will probably be suffering while we all are finally cured and getting on with our lives.
It will be pure heaven to see all those tables turned.
jaleenasmom::: Im sorry, I know you have this, but you are not helping. you appear obsessed and a bit nuts. rambling like you do will only delay any serious inquiry about this disorder, please relax, and understand this.
Posted by annoyed on Tue Apr 26, 2005 at 12:37 AM
Dear annoyed,
I am obsessed. I appear obsessed. What do YOU think I am obsessed with???
I think that I am obsessed with, or should I say "blessed with", ignorant, not stupid, dr.s who want to put my mom on a schizo drug because he thinks that she is just making these symptoms happen to her because she is delusionary of parasitosis. I am obsessed with the fact that Dr.s need to be made aware of what is going on with this disease, as well as Lyme and associated tick-bourne illnesses. I have an appointment with the top two dr.s in our county. One is an internest and the other a G.P. Funny, they are quite interested in what I have found and want further information from me.
If I appear nuts to you, you won't be the first. I've had one dr. tell me I needed a psyhciatrist because I couldn't pee. He couldn't find anything wrong with me, and he informed me that he doesn't believe in Fibromyalgia Syndrome so I must be crazy, huh? As in an earlier post, I stated I saw my Gyn two days later who had to dialate my urethra because it was almost completely closed.
But it was all in my head.
Does that sound familiar to anyone out there with Morgellons? Ask the people who have posted here saying they have Morgellons to reveal how they've been treated by their physicians.
As far as "delaying serious inquiry", in your opinion, it may seem so to you. However, I am a supplier of information to three dr.s and one t.v. station where I live. Why do they not see me as "rambling"? Because they see my passion and my commitment to the cause of getting people informed about what is going on. Because they see me wanting to seek out and reach out to others who have these diseases so they will know they are NOT NUTS!
My "ramblings" are points I make and my opinion. I am entitled to those, as you are yours.
Posted by jaleenasmom on Tue Apr 26, 2005 at 03:23 PM
I am obsessed. I appear obsessed. What do YOU think I am obsessed with???
I think that I am obsessed with, or should I say "blessed with", ignorant, not stupid, dr.s who want to put my mom on a schizo drug because he thinks that she is just making these symptoms happen to her because she is delusionary of parasitosis. I am obsessed with the fact that Dr.s need to be made aware of what is going on with this disease, as well as Lyme and associated tick-bourne illnesses. I have an appointment with the top two dr.s in our county. One is an internest and the other a G.P. Funny, they are quite interested in what I have found and want further information from me.
If I appear nuts to you, you won't be the first. I've had one dr. tell me I needed a psyhciatrist because I couldn't pee. He couldn't find anything wrong with me, and he informed me that he doesn't believe in Fibromyalgia Syndrome so I must be crazy, huh? As in an earlier post, I stated I saw my Gyn two days later who had to dialate my urethra because it was almost completely closed.
But it was all in my head.
Does that sound familiar to anyone out there with Morgellons? Ask the people who have posted here saying they have Morgellons to reveal how they've been treated by their physicians.
As far as "delaying serious inquiry", in your opinion, it may seem so to you. However, I am a supplier of information to three dr.s and one t.v. station where I live. Why do they not see me as "rambling"? Because they see my passion and my commitment to the cause of getting people informed about what is going on. Because they see me wanting to seek out and reach out to others who have these diseases so they will know they are NOT NUTS!
My "ramblings" are points I make and my opinion. I am entitled to those, as you are yours.
Oh, and I guess some of my "ramblings" are directed to Rod, not you, therefore you will not be able to understand some of what I speak of. Some to Raoul, my eternal one. 
Come walk in my world, annoyed, and see why I am on this board. There are those who need to speak and those who need someone to listen. I am both.
Hi Rod! Where you been???
Posted by jaleenasmom on Tue Apr 26, 2005 at 04:49 PM
Come walk in my world, annoyed, and see why I am on this board. There are those who need to speak and those who need someone to listen. I am both.
Hi Rod! Where you been???
Hairy:
you're not fooling me with that tooth filling story. I read that book as a kid, too.
Posted by john on Thu May 05, 2005 at 04:06 PM
you're not fooling me with that tooth filling story. I read that book as a kid, too.
I, Raoul, also read that book when I was Little Raoul. This Hairy is very crazy, this I know, but I learned the better English from him, and now that I am with the Llamas all the day, my English is not so good. It is true that we are on tour, but the Llamas have all the interviews, and I am the beefcake, and talk not too much. Don't get me started. Rrrraoul
Posted by Raoul on Thu May 05, 2005 at 04:40 PM
RAOUL, you should write a book...
Posted by jaleenasmom on Fri May 06, 2005 at 02:29 AM
I have beaten this as I beaten EBV/CFS and Cancer.
I is all diet, I want share it with you. Once I committed myself to this, I shed off the mites, parasites and mange from my skin and surroundings,,,,I have helped a few people out there,,,you have to stay on the diet, which will not hurt you,,,,no pomegranite juice needed here.
Posted by Tampa Paul in Tampa Florida on Wed May 11, 2005 at 07:36 PM
I is all diet, I want share it with you. Once I committed myself to this, I shed off the mites, parasites and mange from my skin and surroundings,,,,I have helped a few people out there,,,you have to stay on the diet, which will not hurt you,,,,no pomegranite juice needed here.
I have had Morgellons for 15+ years. I was on treatment a few years back for 3 Tick-born Diseases. I now test Negative for them, however still sick. Morgellons survived the 1 and 1/2 years of combinations of 5 Anti-biotic Treatment.
For the past month I have been treated for Stenotrophomonas maltophilia infection. First 3 weeks I had extreme Headaches, Medium to High Fevers, etc., on a daily basis, which shows that there is a Bacterial Infection. I have 2 more months to go, about a week ago my Fever broke, and my headaches for the most part disipated.
I am slowly getting better. There are some vivid photos at
http://www.morgellonsusa.com
It is my Websight, however there is a great error that I need to fix,....
Where I called certain Cysts, (Lyme Borrelia Cysts) as they tested Negative for this.
I believe they are a form of how the Fibers grow in segmented links, compacted and hard until they burst open, the Cysts were from the Digestive Tract, and all other samples came from my skin,
Also, I found a glass bead in the bathroom once, that had the same Fibers growing on it, Wherever there has been Moisture,......
Stenotrophomonas maltophilia is known to grow on plastics, glass, etc.
Posted by Greg Vigil in San Diego, CA on Mon Jun 06, 2005 at 08:21 AM
For the past month I have been treated for Stenotrophomonas maltophilia infection. First 3 weeks I had extreme Headaches, Medium to High Fevers, etc., on a daily basis, which shows that there is a Bacterial Infection. I have 2 more months to go, about a week ago my Fever broke, and my headaches for the most part disipated.
I am slowly getting better. There are some vivid photos at
http://www.morgellonsusa.com
It is my Websight, however there is a great error that I need to fix,....
Where I called certain Cysts, (Lyme Borrelia Cysts) as they tested Negative for this.
I believe they are a form of how the Fibers grow in segmented links, compacted and hard until they burst open, the Cysts were from the Digestive Tract, and all other samples came from my skin,
Also, I found a glass bead in the bathroom once, that had the same Fibers growing on it, Wherever there has been Moisture,......
Stenotrophomonas maltophilia is known to grow on plastics, glass, etc.
hey i had this Morgellon's diseae. So iknow it's real. Actually, i think there's a condition around that mimicks morgellons but isn't quite exactly the real thing. It also mimicks many ot her skin diseases/conditions. I lived with thi terrible condition for 1.5 yrs and got rid of it using a chemical skin powder that knocked it out. To anyone with the condition that may want help, you can look up the latest research or email me and I 'll send you the list of research, products that cure it, and other stories from other people. I documented the whole ordeal and saved info and when it was completed I passed it onto others who suffered from it as well.
Take care,
Jay- .(JavaScript must be enabled to view this email address)
Posted by Jay in TX on Fri Jun 17, 2005 at 07:55 PM
Take care,
Jay- .(JavaScript must be enabled to view this email address)
Hi all,
I think that when unwell people take the time and trouble to discuss this awful disease we should applaud, not censure, their undoubted bravery.
From my research, it would seem that there may sometimes be a link between Morgellon's and a concomitant bacterial infection, as well as a link with certain parasites invading the body.
I most certainly do not think that people who are exhibiting the clinical features suggestive of Morgellon's are suffering from Delusional Parasitosis.
That is not to say that such a psychosis does not exist. Of course it does, but common decency should tell us that we should not be using this term pejoratively, because those who suffer from this are very ill.
What is society coming to, when the sick cannot expect either to receive an accurate diagnosis and treatment, or even much in the way of kindness and support from their fellow human beings?
Posted by Mo on Fri Jul 08, 2005 at 03:49 AM
I think that when unwell people take the time and trouble to discuss this awful disease we should applaud, not censure, their undoubted bravery.
From my research, it would seem that there may sometimes be a link between Morgellon's and a concomitant bacterial infection, as well as a link with certain parasites invading the body.
I most certainly do not think that people who are exhibiting the clinical features suggestive of Morgellon's are suffering from Delusional Parasitosis.
That is not to say that such a psychosis does not exist. Of course it does, but common decency should tell us that we should not be using this term pejoratively, because those who suffer from this are very ill.
What is society coming to, when the sick cannot expect either to receive an accurate diagnosis and treatment, or even much in the way of kindness and support from their fellow human beings?
Mo,
I don't know who you are and that does not matter.I just want to thank you for your compassionate message here and you have stated the exact message I have wanted to convey but could not find the right words.
I am one of the sufferers of Morgellons and have gone through hell, but possibly not as much as others here have gone through.
I found an understanding infectious disease specialist, as well as friends who have helped me find alternative, agressive, natural treatment that is finally getting me well. It has been a wild ride and I want everyone who has suffered with disease to have dignity restored, proper diagnosis made available and treatments made available to get rid of this stuff readily available. We have "cracked the surface" in getting there, but we need more people with a voice like yours to help speed things along. Thank you, from the bottom of heart.
PS - To those out there who have been critical and judgemental - I am NOT delusional and I have returned to work in a very well respected position!
Posted by Victoria Moore in Charlotte, NC on Fri Jul 08, 2005 at 05:42 AM
I don't know who you are and that does not matter.I just want to thank you for your compassionate message here and you have stated the exact message I have wanted to convey but could not find the right words.
I am one of the sufferers of Morgellons and have gone through hell, but possibly not as much as others here have gone through.
I found an understanding infectious disease specialist, as well as friends who have helped me find alternative, agressive, natural treatment that is finally getting me well. It has been a wild ride and I want everyone who has suffered with disease to have dignity restored, proper diagnosis made available and treatments made available to get rid of this stuff readily available. We have "cracked the surface" in getting there, but we need more people with a voice like yours to help speed things along. Thank you, from the bottom of heart.
PS - To those out there who have been critical and judgemental - I am NOT delusional and I have returned to work in a very well respected position!
Folks suffering from Morgellon's or related conditions: I"d like you to give this product a try. It's cheap and i"ve heard so many positive testimonies regarding it's use. It's not a cure but it DOES stope the itching and crawling sensations almost instantly. I'm not going to blatantly post a "spamlike" url for all to critique but those serious in relief may contact me and I'll be glad to steer you in the right direction. I used this product myself and can say firsthand that it definitely stops the itchiness & craly things almost instantly. After a few days it will not come back. Now please hear what I said because I did not say it was a cure- It will alleviate some of your symptome. Drop me a line if you'd like to talk more about thihs because I truly know what you'r going thru. I had it soooooo bad a few years ago and honestly thought I was going to die.
Good Luck! .(JavaScript must be enabled to view this email address)
Posted by Jay on Fri Jul 08, 2005 at 07:40 PM
Good Luck! .(JavaScript must be enabled to view this email address)
My website has pictures, including a video, of my "delusions." These are currently being studied, btw, by entomologists at the Unviersity of Georgia, who have suggested that my delusions may be (caused by) a flagellate protozoa.
http://www.dpref.com
Posted by Ever Hopeful on Tue Jul 12, 2005 at 03:49 AM
http://www.dpref.com
Hey "EverHopeful"!
I'm looking at your website now and you're funny as hell! HA!!! I love the delusions. They look EXACTLY like the delusions that I had!!!!!!!!
You know what? I think we've been mass hypnotized!
Drop me a line sometime at .(JavaScript must be enabled to view this email address)
Posted by Jay on Tue Jul 12, 2005 at 07:36 PM
I'm looking at your website now and you're funny as hell! HA!!! I love the delusions. They look EXACTLY like the delusions that I had!!!!!!!!
You know what? I think we've been mass hypnotized!
Drop me a line sometime at .(JavaScript must be enabled to view this email address)
I had Morgellons until My children and I went and were treated by Dr. George Schwartz. He saved our lives. The medical community just passed us off to to others to be looked at. And a warning to all this bacteria Stenotrophomonasmaltophilia comes from bottled water and in my familys case it all makes sense. I was trying to be a good mother and my children and I were going to quit drinking soda and so I started buying bottled water and thats when the nightmare began. It all sounds crazy and in fact it makes a person crazy. Thank god for Dr. Schwartz who is the one and only in his perfession that takes the time to listen to his patients and actually does a culture to figure out the problem.
Posted by Kim in Idaho Falls, Idaho on Fri Jul 22, 2005 at 10:34 PM
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